Prayer Team,
My favorite
side story in the whole “passion week” of our Savior is the washing of the disciple’s
feet. I am so encouraged by the humility and servant heart of Jesus. In my
guessing, He had to deny Himself in order to do this: His foreknowledge, His
feelings, and His status. Jesus held His tongue as He held Judas’ feet knowing
in hours Judas would turn Him in. The denier Peter reluctantly got clean feet
as Jesus talked Him through it, reeling Peter in while keeping His emotions in
check. Jesus chose to wash “doubting” Thomas’ feet as a teacher teaching a disciple
rather than what was really going on: The King of kings, the King of Glory was washing
the feet of sinners the day before He made atonement for all of mankind.
Please Pray:
This Thursday
the 13th Anna will have a procedure to install a GJ tube in the
hopes of eliminating her reflux. Her existing G-tube will be replaced with two tubes
one to the stomach and the other depositing in the intestine. This needs to be
threaded with an x-ray video so we are talking potentially a large amount of radiation
here.
-Please pray that it would be done with great skill
and
accuracy.
-With the least amount of exposure to radiation.
-that it would effectively treat Anna’s reflux as this is the
last non-surgical treatment for reflux.
We had a
follow-up with Neurology about an EEG that Anna had last week. The test still showed
Hypsarrhythmia with the absence of seizures. Our Doc said that the long term impact
of these chaotic brainwaves will most likely affect her cognition. Lindsey then
talked about observable “gains” (abilities/milestones) that Anna has done. They
are few, even the Neurologist agreed. He dug through Anna’s past MRIs and found
one that pictures a brain formation seemingly abnormal. He did not elaborate in
case it is nothing, however he did order a one hour MRI under general
anesthesia to get a better picture. He said that it could be a diagnosis different
from the Hypoxic Ischemic event she had before birth.
-Pray for a peace that surpasses understanding as our minds
are tempted to fear regarding another possible brain diagnosis.
-For courage to love and empower Anna to the fullness of the
ability that God has given her no matter the gains.
-For the hypsarrythmia to be cast our and with it all the
potential long term effects.
-for full healing because we are praying to the
Healer.
Praise God
Anna started preschool last week at Fletcher Miller. It is a school exclusive
to special needs people ages 3-21. It’s been around for 50 years and they have
a program that we are very excited about that aligns with Anna’s IEP. The first
day went poorly, Anna could not stop refluxing. The teachers and para assigned
to her were glad to get rid of her and gave us a talking to like we didn’t know
how bad her reflux was. We have gone two other times and have had much more success
and time to talk things through.
-Please pray for Anna to not be distracted by her medical
conditions while in school.
-For no reflux, or anything else that would make her
undesirable to work with. We want her loved on there and not seen as a burden
to be avoided.
-For our family to be available, attentive, and used by the
God as a witness to the huge special needs community at that school; That we
could articulate God’s story of His glory in Anna.
Praise God
for a date night coming up this Saturday night. Lindsey and I have really dug
our heels in and become intentional with our time after the kids go to bed. We
have focused on eye-to-eye time and rich communication. This has been a source
of renewal and strength. I get the chance to improve my listening!
Great blessings in Christ,
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