Monday, April 18, 2016

Notable Miracles

 
God showed up, healing is happening, His hand is evident: through provision, skill, gifting, medicine and the supernatural. God amazes me, these are the notable, still some i am leaving out.  
 
1. The timing of Anna's birth, it is very likely that Anna was going to die in the womb had we not gone to the hospital when we did, she was born so close to death.
2. A Neonatologist from Children's Hospital Chicago was doing a on call visit to a NICU-less hospital the day and time Anna was born there. Her expertise gave accurate evaluations and the best care from the start. 
3. Two days after birth, we were told that all the blood pressure medicine and supplements had been given and Anna could not stabilize on her own and if it continued this way that it could possibly lead to death. we prayed that night as we dropped her onto the alter before God like Issac. Overnight Anna responded.
4. Anna had much neurological damage and so the doctors warned us that Anna would not take a bottle. We had a nurse that felt differently, she practiced with Anna's tongue, and soon Anna grew into the ability to suck and swallow and gag. She was taking bottles by the time we were discharged. 
5. Seizures were common to Anna the first month of her life, but thanks to Phenobarbital we haven't evidenced any seizures from Anna since. Now is isn't on any seizure medicine.
6. The soft fontanelle along with frequent lumbar punctures was used of God to buy time for the brain surgery. Anna gained strength, blood clots cleared, and surgery went well. 
7. Anna can hear. With all of her senses compromised or eliminated its a wonder that her hearing is intact. It could have been wiped out with her vision, but it  wasn't. Perhaps that falls under the supernatural protection rather than conventional. Its so wonderful. 
8. The shunt Anna has, the precise positioning, the setting of pressure to open the valve, the threading, the surgery -it all went well no clogging, no malfunctions, no infections. To not have a shunt revision in an infant placed shunt is wonderfully rare. We haven't touched it.
9. Another family of Christ followers who have had the similar diagnosis for their child and can educate, listen, and counsel us. They came alongside us, stopped what they were doing, all within one month of Anna's birth. 
10. Financial provision for over a million dollars of medical care. Between our insurance and gifts   we were also able to extend my medical leave time so I didn't work for 6 weeks. We had medical debt up until this years tax return. We have paid in full all medical debt thus far for Anna! 
11. Federal Medical Provision under the Medicaid Life Limiting Waiver. This is a supplemental insurance to pay for many things the insurance won't like durable medical equipment, and for Lindsey to be Anna's nurse.
12. The medical exception that Anna is regarding her diagnosis of Hypsarrythmia but not showing infantile spasms. She remains seizure free and now thanks to Sabril is not showing Hypsarrythmia either. 
13. After nine months of being able to only indicate pain and suffering by restlessness and crying. We accepted that maybe this is how she will be.  Anna started to smile, what a delight, a huge cognitive milestone. Just in time for Christmas pictures. There hasn't been a day since where she hasn't smiled!
14. Another cognitive milestone that Anna meets is that she can sleep through the night. Many kids with her handicap do not sleep through the night. She may be hard to put down, but once she is sleeping she stays asleep! 
15. A Bronchoscopy revealed severe aspiration and trachea-malasia which makes Anna probable for lung infections regularly and needing to be on oxygen. Anna has never been hospitalized for a lung infection nor has she ever been on oxygen, her oxygen saturation levels mysteriously soar like a normal developing child. The G-Tube surgery has been an answer to prayer to minimize aspiration and safely administer liquids, medicine and food for weight gain.

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